Care & Support

Practical, everyday support for children and families living with an inherited genetic disorder: what may help, what to prepare for, and who to ask.

This is care education, not a treatment plan

Care & Support explains areas of care that may matter and questions worth asking. It never prescribes treatment, medicines, devices, diets, or exercises, and it does not tell you what your individual child needs. Those decisions belong to your child's care team.

Choose a condition

Care & Support is organised by condition. Choose one to see practical care areas; the system never works out a condition or a care plan for you.

Choose a condition above to see practical care areas, questions to ask, and generic support items.