Educational resources on caregiving, early recognition, child development, and supporting your family, in plain language.
A plain-language booklet on what inherited genetic disorders are, how carriers pass them on, and what families can do if they are worried.
A simple checklist of signs worth discussing with a doctor, and what to tell them when you go.
A general guide to how children grow and develop, and the milestones many reach along the way.
A guide to the four inherited conditions covered on Shared Blood: what each one is, the signs to look for, and how to support your child at home and at school.
A simple checklist for before, during and after appointments, so the care team has what it needs and you leave knowing what happens next.
A simple checklist of signs worth discussing with a doctor, and what to tell them when you go.
A simple checklist for before, during and after appointments, so the care team has what it needs and you leave knowing what happens next.
Everyday nutrition advice for parents and caregivers, and the signs that a child may need extra nutritional support.
Caring for the emotional health of your child and yourself while managing a health condition.
A simple checklist for working with your child’s school so they can learn, take part and feel included while their health needs are understood.
A general guide to how children grow and develop, and the milestones many reach along the way.
How to notice when a child may need extra developmental support, and where to turn.
Free printable checklists, booklets and infographics to support you at home.
Understanding Inherited Genetic Disorders
PDF · 1.5 MB · English & Urdu
Recognising Early Symptoms
Checklist · PDF · 1.5 MB · English & Urdu
Development Milestones
Infographic · PNG · 1.8 MB · English
Caregiver Learning Booklet
PDF · 2.3 MB · English & Urdu
Preparing for Medical Appointments
Checklist · PDF · 1.5 MB · English & Urdu
Feeding & Nutrition Support
Checklist · PDF · 1.1 MB · English & Urdu
Emotional Wellbeing for Families
Poster · PNG · 1.8 MB · English
School & Education Support
Checklist · PDF · 1.1 MB · English & Urdu
Recognising Developmental Delays
Infographic · PNG · 1.8 MB · English
Learn more about the conditions covered on Shared Blood.
An inherited blood disorder that affects how the body produces hemoglobin, the protein red blood cells use to carry oxygen.
An inherited condition that mainly affects the lungs and digestive system by changing how the body manages mucus and salt.
A group of rare inherited conditions in which the body's cells cannot break down certain substances, allowing them to build up over time.
Related:Beta ThalassemiaCystic Fibrosis
A group of inherited conditions that affect connective tissue, the material that gives structure and support to skin, joints, and blood vessels.
